Where did this brain injury film thing come from?


Listen to this post:


As more folks I haven’t met are visiting this blog, I realized a little introduction is in order!

This brain injury film thing started in 2011 when Impetus Arts produced its 3rd storytelling performance called “No One Wants to See the Wires.” It’s a writing and performance workshop for disabled artists. I was in the audience–mesmerized–for the first one, stuck in bed asleep and recovering during the second one, and invited to be in the third.

I’d been doing mixed abilities performance art, dance, and theater on and off since 1996 as a non-disabled performer or backstage person. I had no experience with film except being in a few student productions as an undergrad. I was convinced I couldn’t perform live in “Wires” because of the stress, noise, lights, and crowds. I decided to audio record a monologue instead of perform.

But one day in January 2011, there was a real, very painful incident with a piece of fish. It took 45 minutes, pacing, sobbing, and grease burns on my hands and face to get this one piece of salmon cooked. I felt like that one event somehow brought together every single brain injury challenge I was facing at one time. Most people I knew–including family and my rehab providers–didn’t appreciate how many impairments I had because some of them were mild. But when they all showed up at once like that, the picture got clear. I logged the event in my journal for posterity. And a short while later, I decided it would make a funny film. I re-read the journal entry and spent 10 minutes writing this real event into an absurd daytime TV cooking program script and temporarily called it “Cooking with Brain Injury.”

Then, I forgot to change the name, and we went on to have Golden Moon Media film it.

Cheryl and Bill stand at the stove staring intently at a saucepan, waiting for something to happen. [In case you’re wondering: no, we did not turn on the stove. And yes, we are waiting for the fish to cook anyway. Sound familiar to anyone out there with a brain injury?]

I’ve shown this film at disability film festivals and even a non-disability film festival. It’s played in brain injury support groups, a speech-language pathology conference, and in many living rooms. It got me a RACC grant to produce “Friending with Brain Injury!” This second film is much more about disability advocacy and discrimination and is also fairly absurdist. It was a hit at Disability Comedy Movie Night, which ended up being standing room only.

A gross pink background with a smart phone in front. On the screen is a tasteless image with a thumb's up, "Friending On The Go!" and "Learn How!". [This Friending on the go! app for mobile devices is one of the tasteless consolation prizes on the show.]

These films are true and painful and are comedies at the same time. Folks feel more welcome to watch and listen to these difficult stories if they have permission to laugh too.

Now, I’ve put The Cheryl Show on hold to focus on others. One reason? When I make a film, some people have gotten the wrong impression about others with brain injury. They think other people don’t make films because they don’t have the abilities, motivation, or the voice. No, no, no, people! It’s because of resources. I’m not sharing parts of other people’s stories because they can’t do it themselves but because I have the access to do it.

So this documentary features a bunch of artists, not me. And I just got another RACC grant to create and produce a series of short films. I will partner with several folks with severe impairments from brain injury to craft, film, and edit their short films together all on my tablet computer with hi-def camera. They will have the final artistic call in every step of the project, which is a pretty novel approach.

If you’re a person with a brain injury who has some art or a story to share, drop me a line. You can be a Guest Blogger on this blog! That way folks won’t have to read any more ramblings from me!


8 responses to “Where did this brain injury film thing come from?”

  1. Thanks for the introduction. I really love your project and thanks for “coming out” with your brain injury. We all learn differently and we all make blunders, no matter the state of our brain. The more we learn about brain, the less we will depend on a one size fits all method of education. I can’t wait to see your films. Oh, and I just typed my name in the place I was supposed to type my email. 🙂 Doing it over, maybe this time I’ll get it right.

    • Thank you, Joy! I’m enjoying subscribing to your blog!! I’m sure many people without a brain injury have sat around waiting for the salmon to cook without turning on the stove. Of course! There’s a bond many of us with BI have when we turned on the stove consistently our whole lives and then suddenly don’t anymore and don’t even understand why we were standing around looking at raw fish in the first place! I try to capture those subtle things in the oops moments in my films. My second film will be shown at a brain awareness event at Portland State University sometime in March!

  2. just watched your vid! Funny stuff. Weird talking about whether stuff was funny at the time. Not sure if I got a good BI but it definitely was funny at the time. Too funny! I seriously think I was sort of lucky! No … you’re not bothering me! I might take my time but I definitely want to respond. Great to see your America. Loved the the spoken blog bit here. Very concise … I feel like I know whats going on with you a lot better. I await your email challenge!

    • Ah, shucks. I think you had an awesome BI, actually. Someone recently pointed out that I got short-changed with mine because I didn’t stay in the hospital with one of those helmets. But I didn’t have part of my skull removed, so I didn’t need a helmet. No matter, she said. I still should have at least gotten a helmet out of the deal if I had to suffer with the impairments. Cool gal, huh? Email challenge coming directly!

        • Gack! You can tell me because you know that I’ll forget it anyway. No, don’t tell me, on second thought. Everyone likes a good plot twist. Consider plot fully twisted now!

  3. Hey Cheryl!! I just wanted to say, I’m still waiting for you to come over to my house to interview me…sorry, I’m just saying…

    • Oh, Brandon, bless your heart. Did Josh tell you I was super, super sick? I’m so sorry I had to cancel. I’ll call and schedule this weekend, and then we will rush to your house with microphones and cameras in hand!

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